About this blog

I am a high school human anatomy and physiology teacher by trade and I double as a mother of a little girl with Williams Syndrome. When my daughter was diagnosed, I was thankful that I understood how the body worked so I could navigate through the condition and understand what the doctors had to say. This is my way of sharing my knowledge so other parents can have that same power.


Information contained in this site is strictly for education purpose to better understand the conditions associated with Williams Syndrome. You should in no way use this site for diagnosis, treatment or medical guidance. Always seek medical advice from your doctor.



Thursday, January 1, 2015

New resources for you!

I just wanted to let you all know of a new resource that is available through St. Louis Children's Hospital!  Childrens has a Williams syndrome clinic that is fabulous (I highly encourage making a trip to see them).  I had the opportunity to work with the team there in May to write a series of new resources for WS families over various topics.  I personally wrote the parent perspective brochure and then co-authored the school brochure.  I also collaborated on the topics on the informational brochure.  Anyhow, I think they all have a fabulous overview for parents on various topics of concern.  I especially like the hypercalcemia and diet ones.  I wish I had those as a new parent because the colic was the hardest part of Katie's early years.

Here is a screen shot of the topics and you can find the link below. 



On a personal note, I'm very thankful for all the support you have given my blog and education efforts!  2014 has been nothing but amazing and I hope to provide you with the most current information possible in the future!